In the Dark

I'm sorry for leaving everyone in the dark. Frankly, I'm tired and don't feel like talking to many people. I appreciate your emails, voicemails, texts, etc. Don't take it personally that I haven't replied. I just don't want to talk about Evie's feeding issues anymore. Here's a brief update:

Evie was discharged from KKI last week. We STILL do not have any answers to why she won't take her entire bottle. I'm very disappointed with our experience at JHH and KKI for that reason. Evie still has her feeding tube and she is fed through it at almost every feed. Her norm is taking about half of her bottle. But considering she wasn't taking anything by mouth a month ago, this is an improvement.

Will Evie ever eat enough by herself? I have no idea. It scares me to think about it.

Evie is rolling over consistently now. She goes from belly to back and also back to belly.

Her colic days are over, or at least it seems that way. She is a happy baby except when she wants to sleep. She loves her thumb, which means the pacifier is out again.

Our days of running around to doctor visits are back. She will go back to the GI team at Sinai (mixed feelings on them...) and have therapists come to the house.

Our family has gone through a lot this summer. We need more time to sort through some things. While we appreciate your offers to visit, we don't want any visitors right now. I will update the blog as I can. Please do not send me emails looking for updates if I haven't posted. I have more on my mind right now than being a slave to the blog and email. I will reach out to you when I'm ready for visitors and to talk. Thank you for understanding :)

Final Hours at KKI